At a Glance
- Status: Active Consortium
- Year Launched: 2015
- Initiating Organization: CreakyJoints
- Initiator Type: Nonprofit foundation
- Disease focus:
Rheumatoid Arthritis, ankylosing spondylitis, psoriatic arthritis
- Location: North America
Arthritis Power is the first-ever patient-led, patient-centered, and patient-generated research registry for arthritis. Developed by CreakyJoints in partnership with the University of Alabama at Birmingham, it’s empowering in two ways. First, it helps you take control of your disease by tracking what’s important to you, and second, your data is donated anonymously to research. Arthritis Power is part of PCORnet, the National Patient-Centered Clinical Research Network, a large, national network for conducting clinical outcomes research. The app currently focuses on rheumatoid arthritis, ankylosing spondylitis, and psoriatic arthritis. You can access it anywhere you have an Internet connection, such as your desktop, laptop, tablet, or mobile phone. A mobile app is in development.
You can use Arthritis Power to track how you’re doing on a medication, the development of side effects, your ability to do something you want, etc. The results can be graphed and shared with anyone. You can give it to your doctor so it’s part of your chart or share the results with your spouse to help them understand the impact of your disease.
Arthritis Power was launched in 2014
Structure & Governance
Arthritis Power is a CreakyJoints initiative, which is an online, non-profit, patient support community that collaborates with the University of Alabama Birmingham, and is supported by the Patient Centered Outcomes Research Institute (PCORI).
Points of Contact
515 N. Midland Ave
Upper Nyack, NY 10960
Sponsors & Partners
The University of Alabama at Birmingham (partner)
National Patient-Centered Clinical Research Network (PCORnet) (patient groups)