CF Biomarker Consortium


At a Glance
  • Status: Active Consortium
  • Initiating Organization: The Cystic Fibrosis Foundation
  • Initiator Type: Nonprofit foundation
  • No disease focus
  • Location: North America

Abstract

CF Biomarker Consortium is a research consortium of the Cystic Fibrosis Foundation.  The CF Foundation is the world's leader in the search for a cure for cystic fibrosis, and nearly every CF-specific drug available today was made possible with their financial support. The CF Foundation supports a wide range of innovative research programs to discover and develop new and effective CF therapies. By harnessing the best minds in science and medicine, the Foundation has made tremendous progress in understanding and treating the disease, and they continue to pursue every opportunity that could help people with CF live longer and healthier lives.

Mission

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.  The focus of the CF Biomarker Consortium is in the areas of identifying biomarkers that:

  • Track and predict disease progression (including early lung disease, lung function decline, and pulmonary exacerbations)
  • Detect improved function of CFTR for new candidate targets and pathways for CF
  • Validate preclinical animal model systems

Consortium History

For a full history of the Cystic Fibrosis Foundation, click here

Structure & Governance

Members of the Board of Trustees (of the Cystic Fibrosis Foundation) hold a legal and fiduciary responsibility for the operations of the Foundation.

Their Board of Trustees is a diverse group of 16 independent members plus the CEO, who bring a variety of experiences and expertise to the governance of the CF Foundation.

Financing

The CF Foundation is a donor-funded, 501(c)(3) nonprofit that is fully accredited by the Better Business Bureau's (BBB) Wise Giving Alliance program.

Points of Contact

Cystic Fibrosis Foundation (national headquarters)
6931 Arlington Road, 2nd floor
Bethesda, Maryland 20814

Local: 301-951-4422
Toll free: 800-FIGHT-CF (800-344-4823)

Email: info@cff.org

Sponsors & Partners

John P. Clancy, M.D (Cincinnati Children’s Hospital Medical Center)

Scott Sagel, M.D. (University of Colorado Health Sciences Center)

Assem G. Ziady, Ph.D. ( Cincinnati Children’s Hospital Medical Center)

Marianne Muhlebach, M.D. (University of North Carolina at Chapel Hill)

Thomas Kelley, Ph.D. (Case Western Reserve University)

Joe Pilewski, M.D. (University of Pittsburgh)

Sonya Heltshe, Ph.D. (University of Washington and Seattle Children’s Research Institute)

Nicole Hamblett, Ph.D. (University of Washington and Seattle Children’s Research Institute)

Steve Rowe, M.D. (University of Alabama at Birmingham)


Last Updated: 06/19/2017

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