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Consortium title & disease focus Tool Development


Biomarker Research


Basic Research




Product Development


1000 Genomes Project
Academic Drug Discovery Consortium
Accelerating Medicines Partnership - Alzheimer's
Alzheimer's Disease
Accelerating Medicines Partnership—Autoimmune Diseases (Rheumatoid Arthritis & Lupus)
Arthritis, Lupus
Accelerating Medicines Partnership—Diabetes
Type 2 Diabetes
All of Us Research Program
Alzheimer’s Disease Genetics Consortium (ADGC)
Alzheimer's Disease
Analgesic, Anesthetic, and Addiction Clinical Trial Translations, Innovations, Opportunities, and Networks (ACTTION)
Antilope Project
Arthritis Power
Rheumatoid Arthritis, ankylosing spondylitis, psoriatic arthritis
Asian Cancer Research Group (ACRG)
Big Data Public Private Forum (BIG)
Biobank Standardisation and Harmonisation for Research Excellence in the European Union (BIOSHARE-EU)
BIOSAPIENS Network of Excellence
BrainNet Europe (BNE)
Brain disorders
Building data bridges between biological and medical infrastructure in Europe (BioMedBridges)
California Integrated Data Exchange (Cal INDEX)
Cancer Genomics Consortium (CGC)
Cancer Genomics of the Kidney (CAGEKID)
Cancer treatment and monitoring through identification of circulating tumor cells and tumor related nucleic acids in blood (CANCER-ID)
CArdioVAscular Research Information System (CAVARIS)
Care Connectivity Consortium (CCC)
Center for Integration of Medicine & Innovative Technology (CIMIT)
Childrens Brain Tumor Tissue Consortium (CBTTC)
Child Brain Cancer
CKD Biomarkers Consortium (BioCon)
Chronic Kidney Disease
Clinical Data Interchange Standards Consortium (CDISC)
Clinical Pharmacogenetics Implementation Consortium (CPIC)
Clinical Research in ALS and Related Disorders for Therapeutic Development Consortium (CReATe)
Frontotemporal Dementia, Hereditary Spastic Paraplegia, Primary Lateral Sclerosis...
Clinical Trials Transformation Initiative (CTTI)
Coalition For Accelerating Standards and Therapies (CFAST)
Alzheimer's Disease, Diabetes, Parkinson's Disease...
Collaboratory of AIDS Researchers for Eradication (CARE)
Combatting Bacterial Resistance in Europe (COMBACTE)
Bacterial Resistance
CommonMind Consortium
Bipolar Disorder, Schizophrenia
CommonWell Health Alliance (CHA)
Consortia Advancing Standards in Research Administration Information (CASRAI)
Consortium for Functional Glycomics (CFG)
Consortium on Adventitious Agent Contamination in Biomanufacturing (CAACB)
COPD Biomarker Qualification Consortium (CBQC)
Creating a European Coordination Network for eHealth Interoperability Implementation (CALLIOPE)
Critical Path for Parkinson's
Parkinson's Disease
Critical Path Institute (C-Path)
Cross Pharmaceutical Investigator Databank
CTFR Folding Consortium
cystic fibrosis
Cyttron II
Dementia Consortium
Alzheimer's Disease
Dementias Research Platform UK
Diabetes Genetics Replication and Meta-Analysis (DIAGRAM) Consortium
Type 2 Diabetes
Diabetic Complications Consortium (DiaComp)
Drug Disease Model Resources (DDMoRe)
Duchenne Regulatory Sciences Consortium (D-RSC)
Duchenne muscular dystrophy
eagle-i Consortium
Electronic Health Records Systems for Clinical Research (EHR4CR)
Electronic Medical Records and Genomics (eMERGE) Network
Electronic Patient-Reported Outcome (ePRO) Consortium
European Bank for induced pluripotent STEM Cells (EBiSC)
European Clinical Research Infrastructures Network (ECRIN)
European Consortium for Stem Cell Therapy for Neurodegenerative Diseases
Parkinson's Disease, Huntington's disease
European large-scale functional genomics in the rat for translational research (EURATRANS)
European Life Sciences Infrastructure for Biological Information (ELIXIR)
European Management Platform for Emerging and Re-emerging Infectious Disease Entities (EMPERIE)
Acute/Chronic Infectious Disease
European Medical Information Framework (EMIF)
Alzheimer's Disease, Obesity, Type 1 Diabetes
European Microbicides Project (EMPRO)
European Network for Genetic and Genomic Epidemiology (ENGAGE)
European Network for Translational Research in Atrial Fibrillation (EUTRAF)
Atrial Fibrillation
European Translational Information & Knowledge Management Services (eTRIKS)
Exploring and Understanding Adverse Drug Reactions by Integrative Mining of Clinical Records and Biomedical Knowledge (EU-ADR)
Fatty Liver Inhibition of Progression
Type 1 Diabetes
FP6 Rare Disease Project Listing
From data sharing and integration via VPH models to personalized medicine (P-Medicine)
FSR Clinical Studies Network
Functional Annotation of the Mammalian Genome (FANTOM)
G-Protein Coupled Receptor Consortium (GPCR)
Genetic Association Information Network (GAIN)
Genetic Disorders of Mucociliary Clearance Consortium
Chronic Airways Conditions
Genetic European Variation in Disease (GEUVADIS) Consortium
Genome in a Bottle Consortium
Genomic Standards Consortium (GSC)
Genotype-to-Phenotype Databased: A Holistic Solution (GEN2PHEN)
Global Alliance for Genomics and Health
Global Alliance for Vaccines and Immunization (GAVI)
Hepatitis C, Haemophilus Influenzae type B, Rotavirus...
Global Alliance of Leading Drug Discovery and Development Centers
Global Bioanalysis Consortium (GBC)
Global CEO Initiative on Alzheimer’s Disease
Alzheimer's Disease
Global Research in Paediatrics (GRiP)
GPCR Consortium
Diabetes, Mental Disorders, Oncology
Health Data Consortium (HDC)
Hearing Restoration Project (HRP)
Hearing Loss
Hepatitis C Therapeutic Registry and Research Network (HCV-TARGET)
Hepatitis C
Horizon 2020
Human Immunology Project Consortium (HIPC)
Human Toxicology Project Consortium
Acute/Chronic Infectious Disease
hypertension, hypertension related cardiovascular events
Initiative on Methods, Measurement, and Pain Assessment in Clinical Trials (IMMPACT)
Innovation in Medical Evidence Development and Surveillance (IMEDS)
Innovative Medicines Initiative (IMI)
Innovative MODels Initiative (IMODI)
Institute for Research on Innovation & Science (IRIS)
Integrating the Healthcare Enterprise - Europe (IHE-Europe)
International Consortium for Human Phenotype Terminologies (ICHPT)
Rare Disease
International Consortium of Orthopaedic Registries (ICOR)
International Data Exchange and Data Representation Standards for Proteomics (PROTEOMEXCHANGE)
International Genomics of Alzheimer’s Project (IGAP)
Alzheimer's Disease
International Human Microbiome Standards (IHMS)
International Inflammatory Bowel Disease Genetics Consortium (IIBDGC)
Irritable Bowel Disease
International Molecular Exchange (IMEX) Consortium
International Multiple Sclerosis Genetics (IMSG) Consortium
Multiple Sclerosis
International Pharmaceutical Aerosol Consortium on Regulation & Science (IPAC-RS)
International Thyroid Oncology Group (ITOG)
Thyroid Cancer
International Transporter Consortium (ITC)
Investigator Databank
IVD Industry Connectivity Consortium (IICC)
LEISHDNAVAX (visceral leishmaniasis)
visceral leishmaniasis
Linked2Safety Consortium
Manchester Chemical Biology Network (MCBN)
Manchester Collaborative Centre for Inflammation Research (MCCIR)
Medical Device Epidemiology Network Initiative (MDEpiNet)
Medical Device Innovation, Safety and Security Consortium (MDISS)
Metrics Champion Consortium (MCC)
Microarray Quality Control (MAQC) Consortium
MM4TB (More Medicines for Tuberculosis)
Immunological Diseases
Multiple Sclerosis Outcome Assessments Consortium (MSOAC)
Multiple Sclerosis
Alzheimer's Disease, Epilepsy, Parkinson's Disease
Neurofibromatosis Preclinical Consortium (NFPC)
neuroGLIA Consortium
Neutralizing Antibody Consortium (NAC)
Human Immunodeficiency Virus (HIV)
New York Structural Genomics Research Consortium (NYSGRC)
Next Generation Genome-Based High Resolution Tracing of Pathogens (PATHO-NGen-Trace)
Non-Invasive Macromolecule Delivery Consortium (NMDC)
Observational Health Data Sciences and Informatics (OHDSI)
Observational Medical Outcomes Partnership (OMOP)
Open Pharmacological Concepts Triple Story (Open PHACTS)
Open Source Drug Discovery (OSDD)
Global Health
Parkinson's Disease Research Tools Consortium (PDRTC)
Parkinson's Disease
Parkinson’s Progressive Marker Initiative (PPMI)
Parkinson's Disease
Partnership to Advance Clinical Electronic Research (PACeR)
Patient-Reported Outcome (PRO) Consortium
Asthma, Cognition, Depression...
Patients to Trials Consortium
Pharmaceutical Supply Chain Initiative (PSCI)
Phosphodiesterase inhibitors for negelected parasitic diseases (PDE4NPD)
Schistosomiasis, Chagas disease, Leishmaniasis...
Pistoia Alliance
Placebo Data Analysis in Alzheimer’s Diseases/Mild Cognitive Impairment
Alzheimer's Disease
Preimplantation Genetic Diagnosis (PGD) Consortium
Progressive Multifocal Leukoencephalopathy Consortium (PML Consortium)
Progressive Multifocal Leukoencephalopathy
Project Data Sphere
Promoting and Monitoring Biomedical Informatics in Europe (INBIOMEDvision)
PROteomics SPECification in Time and Space
Psychiatric Genomics Consortium (PGC)
Anorexia, Autism, Bipolar Disorder...
Public Health Data Standards Consortium (PHDSC)
Rare Disease
Regenerative Medicine Coalition
RESPECT Patient Needs
Roadmap for Mental Health Research in Europe (ROAMER)
Mental Health
Rx-360 consortium
Safety Evaluation of Adverse Reactions in Diabetes (SAFEGUARD)
Type 2 Diabetes
Sage Bionetworks
Sampling and Biomarker OPtimization and Harmonization In ALS and other motor neuron diseases (SOPHIA)
Secure Access For Everyone (SAFE) - Biopharma
Semantic Interoperability for Health Network (SemanticHealthNet)
Shaping European Early Dialogues (SEED) for Health Technologies
Sharing Partnership for Innovative Research in Translation (SPIRiT)
Singapore Diabetes Consortium
Stamford Therapeutics Consortium
Statistical Analysis of Large pharma daTasets (SALT)
Strategic Health IT Advanced Research Projects (SHARP)
Stratified Medicine Programme
String of Pearls Institute (PSI)
Cerebrovascular Accident (Strokes), Diabetes Mellitus, Hereditary Colorectal Cancer...
Synodos for NF2
Tau Consortium
Progressive Supranuclear Palsy, other Taupathies
Telemetric and Holter ECG Warehouse (THEW)
The Avoca Quality Consortium
The Epigenome Network of Excellence
The Expression Project for Oncology (expO)
The Molecular Evidence Development Consortium (MED-C)
The Mondriaan Project
The National Consortium for Data Science (NCDS)
The Oncology Research Information Exchange Network (ORIEN)
The Prostate Cancer Clinical Trials Consortium (PCCTC)
Prostate Cancer
TransCelerate BioPharma
Translational Research and Patient Safety in Europe (TRANSFoRm)
Translational Research IT (TraIT)
tranSMART Foundation
Triangle Global Health Consortium (TGHC)
Global Health
Urea Cycle Disorders Consortium (UCDC)
Urea Cycle Disorder
Vasculitis Clinical Research Consortium (VCRC)
Wellcome Trust Case Control Consortium (WTCCC)
WIPO Re: Search
Global Health
Workgroup for Electronic Data Interchange (WEDI)
Worldwide Innovative Networking Consortium

All the information contained in the Consortia-pedia was collected from publically available sources. Decisions to include or exclude a particular listing from Consortia-pedia were also made on the basis of publically available information and the criteria outlined in the FAQs. This site is intended to be an objective resource for the community, and inclusion does not constitute or imply endorsement, recommendation, or approval by FasterCures or the Milken Institute.