GeneQol

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At a Glance
  • Status: Active Consortium
  • Year Launched: 2009
  • Initiating Organization: Mayo Clinic and University of Amsterdam
  • Initiator Type: Academia
  • No disease focus
  • Location: International

Abstract

The international and interdisciplinary Consortium for Genetics and Quality of Life Research, or GeneQol Consortium for short, investigates the genetic disposition of patient-reported quality-of-life outcomes. More than 40 members from 10 different countries, representing a variety of disciplines are actively involved in the consortium. While much of genetic and quality-of-life research is hindered by mono-disciplinary approaches, the GeneQol Consortium is able to pool resources from a diverse group of members, who offer a broad range of expertise relating to genetic disposition. 

Mission

The overall objective of the GeneQol Consortium is to establish strong collaborative and interdisciplinary relationships to conduct clinically relevant research to identify and investigate biological mechanisms, potential genes and genetic variants involved in quality of life.

The GeneQol Consortium aims to facilitate such investigations by supporting communication among members and with others outside the consortium, and thus enabling networking and access to knowledge, skills, and ideas. The overall aim is to compile and pool existing and new data to carry out genetic analyses. The consortium targets data of patients as well as general populations.

Our vision for the future is that emerging insight into the genetic basis of patient-reported quality-of-life outcomes will ultimately allow us to explore new pathways for improving patient care. If we can identify patients who are susceptible to poor quality of life, we will be able to better tailor preventive strategies and/or specific support and treatment

Consortium History

GeneQol Consortium was established in 2009

Structure & Governance

The GeneQol Consortium is a Mayo Clinic (US) and University of Amsterdam(Netherlands) initiative by Jeff A. Sloan and Mirjam A.G. Sprangers.

Impact/Accomplishment

For a list of impacts and accomplishments, click here

Points of Contact

Melissa Thong, PhD
Phone: +31 (0)20 5664661
Email: s.y.thong@amc.uva.nl

Jessica Hess
Assistant of Prof. dr. Jeff Sloan
Phone: +1 507 266 2380
Email: hess.jessica@mayo.edu

Sponsors & Partners

Baas, Frank
Laboratory of Neurogenetics Academic Medical Center,
University of Amsterdam,
Amsterdam, The Netherlands

Bai, Guannan
Preventive Youth Health Care,
Erasmus Medical Center,
Rotterdam, The Netherlands

Barsevick, Andrea M.
Thomas Jefferson University,
Philadelphia, PA, USABartels, Meike
Department of Biological Psychology,
VU University,
Amsterdam, The Netherlands

Bastos, Estela
Departamento de Genética e Biotecnologia,
Escola Ciências da Vida e Ambiente,
Universidade Trás-os-Montes e Alto Douro,
Vila Real,
Portugal Centro de Investigação em Tecnologia Agro-Ambiental e Ciências Biológicas
Portugal

Boomsma, Dorret I.
Department of Biological Psychology,
VU University,
Amsterdam, The Netherlands

Bottomley, Andrew
Quality of Life Department,
EORTC Data Center,
Brussels, Belgium

Brundage, Michael
Department of Oncology,
Queen's University Cancer Centre of Southeastern Ontario,
Kingston, Ontario, Canada

Cella, David
Department of Medical Social Sciences,
Feinberg School of Medicine,
Chicago, IL, USA

Chauhan, Cynthia
Cancer Advocay,
Wichita, KS, USA

Cleeland, Charles S.
Department of Symptom Research,
The University of Texas M. D. Anderson Cancer Center,
Houston, TX, USA

Coens, Corneel
Quality of Life Department,
EORTC Data Center,
Brussels, Belgium

Dueck, Amylou C.
Section of Biostatistics,
Mayo Clinic,
Scottsdale, AZ, USA

Fessele, Kristen L.
University of Utah College of Nursing
UT, USA

Frost, Marlene H.
Women’s Cancer Program,
Mayo Clinic,
Rochester, MN, USA

Hall, Per
Department of Medical Epidemiology and Biostatistics,
Karolinska Institute,
Stockholm, Sweden

Halyard, Michele Y.
Department of Radiation Oncology,
Mayo Clinic,
Scottsdale, AZ, USA

Herath, Priyantha
Department of Neurology,
University of South Carolina School of Medicine, Columbia, USA

Klepstad, Pål
Department of Intensive Care Medicine,
St Olavs University Hospital,
Norwegian University of Technology and Science,
Trondheim, Norway

van Laarhoven, Hanneke
Department of Medical Oncology,
Academic Medical Center,
University of Amsterdam,
Amsterdam, The Netherlands

Lourenço, Gustavo
Laboratory of Cancer Genetics (LAGECA)
Faculty of Medical Sciences (FCM)
University of Campinas (UNICAMP)
Campinas, São Paulo, Brazil

Major, Brittny
Mayo Clinic
Rochester, MN, USA

Martin, Nicholas G.
Queensland Institute of Medical Research,
Brisbane, Australia

Miaskowski, Christine
School of Nursing,
University of California,
San Francisco, CA, USA

Mosing, Miriam
Department of Neuroscience
Karolinska Institutet,
Stockholm, Sweden

Movsas, Benjamin
Department of Radiation Oncology,
Henry Ford Health System,
Detroit, MI, USA

Van Noorden, Cornelis J. F.
Department of Cell Biology and Histology,
Academic Medical Center,
University of Amsterdam,
Amsterdam, The Netherlands

Oliveira, Joao Ricardo
Department of Neuropsychiatry,
Federal University of Pernambuco,
Recife – Pernambuco, Brazil

Ordoñana, Juan
Department of Human Anatomy and Psychobiology,
University of Murcia,
Murcia, Spain

Patrick, Donald L.
Department of Health Services,
University of Washington,
Seattle, WA, USA

Pedersen, Nancy L.
Department of Medical Epidemiology and Biostatistics,
Karolinska; Institute,
Stockholm, Sweden

Pompili, Cecilia
Department of Thoracic Surgery,
St. James's University Hospital, Leeds, UK

Raat, Hein
Preventive Youth Health Care,
Erasmus Medical Center,
Rotterdam, The Netherlands

Reeve, Bryce
Division of Cancer Control and Population Sciences,
National Cancer Institute,
Bethesda, MD, USA

Ristvedt, Stephen L.
Department of Psychiatry,
Washington University,
St. Louis, MO, USA

Schoormans, Dounya
Department of Medical and Clinical Psychology,
Center of Research on Psychology in Somatic diseases (CoRPS)
Tilburg University
Tilburg, The Netherlands

Schwartz, Carolyn
DeltaQuest Foundation, Inc.,
Concord, MA, USA

Shi, Quiling
Department of Symptom Research,
The University of Texas M. D. Anderson Cancer Center,
Houston, TX, USA

Shinozaki, Gen
Sioux Falls Veterans Affairs Medical Center
Sioux Falls, SD, USA

Singh, Jasvinder A.
Minneapolis Veterans Affairs Medical Center and University of Minnesota,
Minneapolis, MN and Mayo Clinic College of Medicine,
Rochester, MN, USA

Sloan, Jeff A.
Department of Health Sciences Research,
Mayo Clinic,
Rochester, MN, USA

Sohrabi, Hamid R.
School of Medical Sciences
Faculty of Health, Engineering and Science, Edith Cowan University, Joondalup, Western Australia, Australia
The McCusker Alzheimer's Research Foundation
Nedlands, Western Australia, Australia

Sprangers, Mirjam A. G.
Department of Medical Psychology,
Academic Medical Center,
University of Amsterdam,
Amsterdam, The Netherlands

Stein, Kevin
Department of Behavioral Sciences and Health Education,
Rollins School of Public Health,
Emory University
Atlanta, GA, USA

Swaab, Dick
The Netherlands Institute for Neuroscience,
Amsterdam, The Netherlands

Talwalkar, Jayant
Division of Gastroenterology & Hepatology,
Mayo Clinic,
Rochester, MN, USA

Thong, Melissa
Department of Medical Clinical Psychology,
Academic Medical Center,
University of Amsterdam,
Amsterdam, The Netherlands

Veenhoven, Ruut
Erasmus Happiness Economics Research Organization EHERO
Erasmus University Rotterdam,
Rotterdam, The Netherlands

Wagner, Gert
Berlin University of Technology,
Max Planck Research School LIFE,
Berlin, Germany

Wang, Xin Shelley
Department of Symptom Research, MD Anderson Cancer Center
Houston, Texas, USA

Webber, Kate
NSW Cancer Survivors Centre, University of New South Wales
Sydney, NSW, Australia

Wierenga, Eddy
Department of Cell Biology and Histology,
Academic Medical Center,
University of Amsterdam,
Amsterdam, The Netherlands

Xiao, Canhua
Nell Hodgson Woodruff School of Nursing
Emory University
Atlanta, GA, USA

Yang, Junwen
Erasmus Medical Center,
Rotterdam, The Netherlands

Yang, Ping
Department of Genetic Epidemiology,
Mayo Clinic,
Rochester, MN, USA

Zwinderman, Ailko H.
Department of Clinical Epidemiology and Biostatistics,
Academic Medical Center,
University of Amsterdam,
Amsterdam, The Netherlands

Last Updated: 06/19/2017
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