GeneQol
Research Areas
At a Glance
- Status: Active Consortium
- Year Launched: 2009
- Initiating Organization: Mayo Clinic and University of Amsterdam
- Initiator Type: Academia
- No disease focus
- Location: International
Abstract
The international and interdisciplinary Consortium for Genetics and Quality of Life Research, or GeneQol Consortium for short, investigates the genetic disposition of patient-reported quality-of-life outcomes. More than 40 members from 10 different countries, representing a variety of disciplines are actively involved in the consortium. While much of genetic and quality-of-life research is hindered by mono-disciplinary approaches, the GeneQol Consortium is able to pool resources from a diverse group of members, who offer a broad range of expertise relating to genetic disposition.
Mission
The overall objective of the GeneQol Consortium is to establish strong collaborative and interdisciplinary relationships to conduct clinically relevant research to identify and investigate biological mechanisms, potential genes and genetic variants involved in quality of life.
The GeneQol Consortium aims to facilitate such investigations by supporting communication among members and with others outside the consortium, and thus enabling networking and access to knowledge, skills, and ideas. The overall aim is to compile and pool existing and new data to carry out genetic analyses. The consortium targets data of patients as well as general populations.
Our vision for the future is that emerging insight into the genetic basis of patient-reported quality-of-life outcomes will ultimately allow us to explore new pathways for improving patient care. If we can identify patients who are susceptible to poor quality of life, we will be able to better tailor preventive strategies and/or specific support and treatment
Consortium History
GeneQol Consortium was established in 2009
Structure & Governance
The GeneQol Consortium is a Mayo Clinic (US) and University of Amsterdam(Netherlands) initiative by Jeff A. Sloan and Mirjam A.G. Sprangers.
Impact/Accomplishment
For a list of impacts and accomplishments, click here
Links/Social Media Feed
Homepage |
https://www.geneqol-consortium.org/ |
Points of Contact
Melissa Thong, PhD
Phone: +31 (0)20 5664661
Email: s.y.thong@amc.uva.nl
Jessica Hess
Assistant of Prof. dr. Jeff Sloan
Phone: +1 507 266 2380
Email: hess.jessica@mayo.edu
Sponsors & Partners
Baas, Frank Laboratory of Neurogenetics Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands Bai, Guannan Barsevick, Andrea M. Bastos, Estela Boomsma, Dorret I. Bottomley, Andrew Brundage, Michael Cella, David Chauhan, Cynthia Cleeland, Charles S. Coens, Corneel Dueck, Amylou C. Fessele, Kristen L. Frost, Marlene H. Hall, Per Halyard, Michele Y. Herath, Priyantha Klepstad, Pål van Laarhoven, Hanneke Lourenço, Gustavo Major, Brittny Martin, Nicholas G. Miaskowski, Christine Mosing, Miriam Movsas, Benjamin Van Noorden, Cornelis J. F. Oliveira, Joao Ricardo Ordoñana, Juan Patrick, Donald L. Pedersen, Nancy L. |
Pompili, Cecilia Raat, Hein Reeve, Bryce Ristvedt, Stephen L. Schoormans, Dounya Schwartz, Carolyn Shi, Quiling Shinozaki, Gen Singh, Jasvinder A. Sloan, Jeff A. Sohrabi, Hamid R. Sprangers, Mirjam A. G. Stein, Kevin Swaab, Dick Talwalkar, Jayant Thong, Melissa Veenhoven, Ruut Wagner, Gert Wang, Xin Shelley Webber, Kate Wierenga, Eddy Xiao, Canhua Yang, Junwen Yang, Ping Zwinderman, Ailko H. |