PanCareSurFup

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At a Glance
  • Status: Completed Consortium
  • Year Launched: 2011
  • Initiating Organization: European Commission 7th Framework Program
  • Initiator Type: Government
  • No disease focus
  • Location: Europe
PanCareSurFup Logo 300x94

Abstract

PanCare Childhood and Adolescent Cancer Survivor Care and Follow-Up Studies is a consortium of 16 European institutions, funded by the FP7 (7th Framework Programme of the European Commission). PanCareSurFup partners carry out research studies into late effects of treatment for cancer, develop evidence-based guidelines for long-term care of childhood cancer survivors, disseminate the results, and provide training and workshops for stakeholders.

Mission

PanCareSurFup is concerned with the long-term complications associated with cancer survival. They carry out a series of epidemiologic studies, engaging sixteen European networks to follow roughly 80,000 survivors of childhood and adolescent cancer. PanCareSurFup’s studies are intended to lead to increased cooperation between treatment and advocacy groups, reduce disparities in survival, and improve outcomes for children and adolescents diagnosed with cancer in Europe. PanCareSurFup will investigate the incidence of heart problems and the emergence of secondary tumours of both adult type and sarcomas following treatment of childhood cancer. The collected information will be used for developing risk estimates of these morbidities as well as of late mortality.

Consortium History

The PanCareSurFup project developed work packages that were useful in providing updates on progress and timelines. 

Financing

Funded by the 7th Framework Programme of the EC

Patient Engagement

Sixteen European networks and institutions will follow about 80,000 survivors of childhood and adolescent cancer, making PanCareSurFup the largest study of its kind to date.

Impact/Accomplishment

For materials relating to PanCareSurFup news and events, click here

Points of Contact

Helena Linge, PhD, project manager
helena.linge@med.lu.se
Lund University
Paediatrics
Skåne University Hospital

Sponsors & Partners

Lunds Universitet

University of Newcastle

Istituto Giannina Gaslini

Universitat Mainz – German Childhood Cancer Registry

Boyne Research Institute

St. Anna Kinderspital

Academisch

Medisch Centrum (AMC) van Amsterdam

University of Torino

Great Ormond Street Hospital for Children NHS Trust

Swiss Childhood Cancer Registry

Institut Gustave Roussy

Centre for Childhood Cancer Survivor Studies, Birmingham

La Fondazione Monza e Brianza il Bambino e la sua Mamma

SIOP Europe

Centre International de Recherche sur le Cancer

Semmelweis University

Last Updated: 06/20/2017
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